Rare Cancers – more common than you think
More than 4 million people in the European Union are affected by rare cancers. Despite the rarity of each of the 186 rare cancers, they represent in total about 22% of all cancer cases, including all cancers in children, diagnosed in the EU27 each year.
Rare Cancers Europe (RCE) is a multi-stakeholder initiative dedicated to putting rare cancers firmly on the European policy agenda and to implementing 39 political and stakeholder recommendations.
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Rare Cancers: Video of the Month
This month, we highlight the new classifications of sarcoma and GIST
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Rare Cancers: Pathologic Diagnosis
MEPs and a Member of the European Commission responsible for European Reference Networks were presented with findings and asked to comment on how to implement the recommendations. View the presentations
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Rare Cancers: The Challenges
- Late or incorrect diagnosis
- Lack of access to appropriate therapies and clinical expertise
- Very limited number of clinical studies due to the small number of patients
Latest News
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03 Apr 2014
When to Consider Doxorubicin Alone or in Combination With Ifosfamide for the Treatment of Advanced or Metastatic Soft Tissue Sarcoma?
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20 Feb 2014
Rare Disease Day 2014
28 February 2014 marks the seventh international Rare Disease Day coordinated by EURORDIS.
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11 Feb 2014
A Cross-Border Perspective On Pathologic Diagnosis of Rare Cancers
This event was hosted by Ms Zofija Mazej Kukovič, MEP, at the European Parliament, Brussels and supported by Alojz Peterle, MEP.