Rare Cancers – more common than you think
Latest news: Rare Cancers Europe Press Release: Specific clinical trial methodology needed for rare cancers
More than 4 million people in the European Union are affected by rare cancers. Despite the rarity of each of the 186 rare cancers, they represent in total about 22% of all cancer cases, including all cancers in children, diagnosed in the EU27 each year.
Rare Cancers Europe (RCE) is a multi-stakeholder initiative dedicated to putting rare cancers firmly on the European policy agenda and to implementing 39 political and stakeholder recommendations.
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Specific clinical trial methodology needed for rare cancers
RCE calls for new criteria to be used in clinical trials on rare cancer treatments. Read the full article.
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Rare Cancers: Pathologic Diagnosis
Just out: the Rare Cancers Europe Consensus Statement summary on the urgent actions needed to improve pathologic diagnosis of rare cancers.
Read the Statement -
Rare Cancers: The Challenges
- Late or incorrect diagnosis
- Lack of access to appropriate therapies and clinical expertise
- Very limited number of clinical studies due to the small number of patients
Latest News
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28 Jan 2015
World Cancer Day 2015: Specific European Reference Networks for rare cancers
Calling for the creation of European Reference Networks (ERN) dedicated to rare cancers
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10 Oct 2014
Press Release: EMA open to discuss use of complementary methodologies for rare cancers
On 3 October 2014 the European Medicines Agency (EMA) hosted a meeting with representatives of Rare Cancers Europe (RCE) to discuss RCE’s recent...
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02 Oct 2014
Press Release: Specific clinical trial methodology needed for rare cancers
A consensus paper published in Annals of Oncology by Rare Cancers Europe (RCE), calls for new methodologies to be applied to clinical studies in rare...