Rare Cancers – more common than you think
More than 4.3 million people in the European Union are affected by rare cancers. Despite the rarity of each of the 198 rare cancers, they represent in total about 22% of all cancer cases, including all cancers in children, diagnosed in the EU28 each year.
Rare Cancers Europe (RCE) is a multi-stakeholder initiative dedicated to putting rare cancers firmly on the European policy agenda and to implementing 39 political and stakeholder recommendations.
30 Apr 2015
EMA/ESMO/Rare Cancers Europe: Joint workshop on chordoma as a model for very rare cancers
The aim of this workshop is to discuss scientific and regulatory evidence requirements for rare diseases, main challenges and identify possible...
01 Apr 2015
Translational Study Identifies BRAF V600E Mutation And CDKN2A Deletion As Markers For Malignant Transformation In Low-Grade Paediatric Gliomas
BRAF V600E mutations and CDKN2A deletions constitute a clinically distinct subtype of sHGGG The Journal of Clinical Oncology published a study on 20...
24 Mar 2015
Press Release: Urgent Need For European Reference Networks For Rare Cancers
We need to get this right, because this can be a basis for truly adding value to the most vulnerable of our citizens, and having one European Reference...