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  • About Rare Cancers
    • Definition of Rare Cancers
    • "Families" and List of Rare Cancers
    • The Burden and the Challenges of Rare Cancers
    • The Added Value of Research on Rare Cancers
  • About the Campaign - Objectives
  • Call to Action
    • Full text
    • Signatories
  • Political Recommendations
  • EU initiatives
  • How to get involved
  • News
    • 21 November 2012: Joint Statement on EU Clinical Trials Regulation
    • 3 October 2012: Survey Open: Access to Rare Cancer Care in the EU – Have Your Say!
    • 20 July 2012: International survey on Pathology in Rare Cancers launched
    • 12 June 2012: U.S. NCI issues guidance for deliberations on rare cancer trial closures
    • 4 June 2012: Rare cancer research project announces world’s largest release of human cancer genome data
    • 2 April 2012: Cancer Cell Line Encyclopedia may help to improve rare cancer research
    • 27 March 2012: European Alliance for Personalised Medicine calls for early access to personalised medicine
    • 12 March 2012: ESMO Conference on Sarcoma and GIST: Doctors lack awareness of rare forgotten cancers
    • 21 February 2012: European conference explores ways to improve clinical research on rare cancers
    • 15 February 2012: International Childhood Cancer Day: Calls for policy changes
    • 24 November 2011: International Rare Cancers Initiative: EORTC – UK – US Global Collaboration
    • 16 November 2011: Recommendations on Quality Criteria for Centres of Expertise for Rare Diseases adopted by EUCERD
    • 10 November 2011: EU consultation to improve recognition of cross-border prescriptions
    • 24 September 2011: Rare Cancers Europe: New name and new action
    • 24 September 2011: European Multidisciplinary Cancer Congress highlights challenges posed by rare cancers
    • 12 July 2011: EP Workshop on Rare Cancers: The Added Value of Closer Cooperation
    • 20 May 2011: European Platform for Rare Disease Registries
    • 31 March 2011: EurocanPlatform for cross border cancer research launched
    • 22 March 2011: EU Register of Clinical Trials launched Online
    • 15 March 2011: European childhood cancer research in danger
    • 28 February 2011: Rare Disease Day – Focus on Health Inequalities
    • 15 February 2011: MEPs remember Children with Cancer
    • 12 January 2011: EP Meeting: Challenges of Rare Cancers
    • 27 November 2010: Open Letter concerning 2011 UN Summit on Non-Communicable Diseases
    • 9 October 2010: ESMO Rare Cancers Press Briefing
    • 9 October 2010: ESMO 2010 Rare Cancers Press Briefing Videos
    • 7 October 2010: Underestimated Obstacles to Rare Cancer Care
    • 5 October 2010: EP Meeting: Orphan Drugs for Rare Cancers
    • 13 September 2010: European Action Against Rare Cancers Secretariat
    • 9 December 2009: EU Committee of Experts on Rare Diseases
    • 24 June 2009: Launch of European Action Against Rare Cancers
    • 10 December 2008: Rare cancers are common; optimal care is not
  • Rare Cancers Conference 2012
  • Surveys
  • Events
  • Cooperating organisations
    • Campaign Organisation Committee
    • Governance principles
    • Video testimonials from Cooperating organisations
    • Quotes from the Cooperating organisations
  • Corporate supporters
  • Links
    • General Cancer Patient Support Organisations and Sites
    • Rare Cancer Type-Specific Patient Support Organisations and Sites
    • General Professional Organisations, Research Organisations and Sites
    • Cancer Type-Specific Professional Organisations, Research Initiatives and Sites
    • Clinical Practice Guidelines for Professionals and Guides for Patients
  • Campaign materials
  • Contact us

Events

2013

29-30 January 2013: EFGCP Annual Conference 2013 & 20th Anniversary - Virtual Future: An exploration of the ethical dimensions of emerging technologies in clinical trials and research, Brussels, Belgium

4 February 2013: Epposi Conference on Building a Framework for Societal Benefits Approach to Health Technology Assessment, Brussels, Belgium

28 February 2013: Rare Disease Day 2013

16-21 March 2013: 12th ESO-ESMO Masterclass in Clinical Oncology (including Spotlight Session on rare cancers), Ermatingen, Switzerland

16-21 March 2013: 6th ESO-EONS Masterclass in Oncology Nursing, Ermatingen, Switzerland

22-23 March 2013: EORTC-EANO-ESMO "Trends in Central Nervous System Malignancies” conference, Prague, Czech Republic

9-11 April 2013: 3rd Annual World Orphan Drug Congress, Washington DC, USA

15-17 April 2013: First Conference of the International Rare Diseases Research Consortium (IRDiRC), Dublin, Ireland

16-17 May 2013: 2013 Biennial Pediatric Neuro-Oncology Basic and Translational Research Conference, Ft Lauderdale, FL, USA

31 May-4 June 2013: 2013 ASCO Annual Meeting, Chicago, IL, USA

13-16 June 2013: 18th Congress of the European Hematology Association (EHA), Stockholm, Sweden

15-17 June 2013: ESO Course: Leukaemia and Lymphoma, Ascona, Switzerland

18 June 2013: World Orphan Drug Congress Asia, Singapore

23-27 June 2013: DIA 2013 49th Annual Meeting: Advancing Therapeutic Innovation and Regulatory Science, Boston, MA, USA

29 June - 02 July 2013: 9th European Cytogenetics Conference, Dublin, Ireland

31 August – 4 September 2013: 25th European Congress of Pathology. Pathology – A Gate to the Future, Lisbon, Portugal

27 September-1 October 2013: ECCO 17 (17th Congress of the European CanCer Organisation) and 38th Congress of the European Society for Medical Oncology, Amsterdam, The Netherlands

7-9 November 2013: Markers in Cancer - A Joint Meeting by EORTC, ASCO, and NCI (With Diagnostic Development Tutorial on 5-7 November 2013), Brussels, Belgium

14-15 November 2013: 4th Annual World Orphan Drug Congress, Geneva, Switzerland


2014

12-15 June 2014: 19th Congress of the European Hematology Association (EHA), Milan, Italy

26-30 September 2014: 39th ESMO Congress, Madrid, Spain

200. Call to Action

© Rare Cancers Europe 2012. All rights reserved.
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