News
21 November 2012: Joint Statement on EU Clinical Trials Regulation
3 October 2012: Survey Open: Access to Rare Cancer Care in the EU – Have Your Say!
20 July 2012: International survey on Pathology in Rare Cancers launched
12 June 2012: U.S. NCI issues guidance for deliberations on rare cancer trial closures
4 June 2012: Rare cancer research project announces world’s largest release of human cancer genome data
2 April 2012: Cancer Cell Line Encyclopedia may help to improve rare cancer research
27 March 2012: European Alliance for Personalised Medicine calls for early access to personalised medicine
12 March 2012: ESMO Conference on Sarcoma and GIST: Doctors lack awareness of rare forgotten cancers
21 February 2012: European conference explores ways to improve clinical research on rare cancers
15 February 2012: International Childhood Cancer Day: Calls for policy changes
*
24 November 2011: International Rare Cancers Initiative: EORTC – UK – US Global Collaboration
16 November 2011: Recommendations on Quality Criteria for Centres of Expertise for Rare Diseases adopted by EUCERD
10 November 2011: EU consultation to improve recognition of cross-border prescriptions
24 September 2011: Rare Cancers Europe: New name and new action
24 September 2011: European Multidisciplinary Cancer Congress highlights challenges posed by rare cancers
12 July 2011: EP Workshop on Rare Cancers: The Added Value of Closer Cooperation
20 May 2011: European Platform for Rare Disease Registries
31 March 2011: EurocanPlatform for cross border cancer research launched
22 March 2011: EU Register of Clinical Trials launched Online
15 March 2011: European childhood cancer research in danger
28 February 2011: Rare Disease Day – Focus on Health Inequalities
15 February 2011: MEPs remember Childern with Cancer
12 January 2011: EP Meeting: Rare Cancers: Specific challenges to citizens and leading researchers
*
27 November 2010: An open letter to all those associated with the September 2011 UN Summit (High Level Meeting) on Non-Communicable Diseases
9 October 2010: ESMO Rare Cancers Press Briefing: The Battle to Improve Outcomes
9 October 2010: ESMO Rare Cancers Press Briefing Videos
7 October 2010: Underestimated Obstacles to Rare Cancer Care
5 October 2010: EP Meeting: Orphan Drugs for Rare Cancers
13 September 2010: European Action Against Rare Cancers Secretariat
*
9 December 2009: EU Committee of Experts on Rare Diseases
24 June 2009: Launch of European Action Against Rare Cancers
*
10 December 2008: Rare cancers are common; optimal care is not: ESMO calls for equal access to optimal care in rare cancers