Political Recommendations on Rare Cancers

The Call to Action Against Rare Cancers is based on a set of Political Recommendations that were developed in 2008 by the cooperating organisations.

The Political Recommendations address the challenges to rare cancer care and research and, most importantly, propose a number of stakeholder actions and public policies at both EU and national level.

The Political Recommendations were the outcome of the conference "Rare Tumours in Europe: Challenges and Solutions". This conference, first held in in November 2008 in Brussels, was hosted by the European Society for Medical Oncology (ESMO) and organised with the other cooperating partners. The conference brought together 150 participants representing a multitude of stakeholders from across Europe. During the workshop sessions, all the conference participants were invited to add their comments to the draft recommendations, which had been prepared in advance by representatives from the cooperating organisations and expert advisers.

The Political Recommendations were finalised and made public at a press event, hosted by MEP Irena Belohorska (Slovakia) in December 2008 in the European Parliament.