Joint Action on Rare Cancers Kick Off Meeting

Objective: Appropriate implementation of European Reference Networks

Neimenster Abbey, Luxembourg, 7 November, 2016

The Joint Action on Rare Cancers will be launched on 7 November in Luxembourg with the participation of Dr Vitenis Andriukaitis, EU Health and Food Safety Commissioner as well as Ms Lydia MUTSCH, Luxembourg’s Minister of Health.
Moderators: G. Apolone, A. Montserrat

  • 14.00    G. Apolone, A. Montserrat: Welcome
  • 14.15    G. Gatta: The epidemiological landscape
  • 14.30    Y. Le Camm: The rare disease perspective
  • 14.45    F. De Lorenzo: The cancer patient perspective
  • 15.00    Madame la Ministre Lydia MUTSCH, LU: Welcome from the Minister of Health of Luxembourg
  • 15.15    TBC: Videoconference with the Minister of Health, IT, Rome
  • 15.30    V. Andriukaitis: Rare cancers and the EU Directive on Cross-Border Healthcare
  • 16.00    P.G. Casali: Objectives of the EU Joint Action on Rare Cancer
  • 17.00    Annie Pannelay (facilitator): Rare Cancers Europe Round table discussion 'The opportunity and the challenges of ERNs' with JY Blay, G. Vassal, J Geissler and E. Terol
  • 17.45    Annie Pannelay (facilitator): Rare Cancers Europe Round table discussion 'The European rare cancer community, JARC and ERNs' with the RCE Steering Committee  
  • 18.30    Discussion with the audience
  • 19.00    Closure of the meeting and networking light dinner reception

Joint Action on Rare Cancers

Joint Actions are funding instrument under the third EU Health Programme 2014-2020.

The Joint Action on Rare Cancers is a multi-stakeholder collaboration between 18 Member States and the European Commission, coordinated by the Fondazione IRCCS Istituto Nazionale dei Tumori of Milan. There are 35 partners involved in the JARC including 8 Ministries of Health/Cancer Control Programme representatives (Cyprus, Czech Republic, France, Ireland, Italy, Malta, Poland, and Spain) and 27 universities, public health institutions, cancer registries, oncological institutes, patients’ associations and other societies/organisations (Organisation of European Cancer Institutes – OECI, The European Society for Paediatric Oncology - SIOPE)

The Joint Action on Rare Cancers aims to:

• Prioritise all rare cancers in the agenda of the EU and the Member States with regards to national cancer plans, harmonisation of practices and funding of research.