Joint Action on Rare Cancers Kick Off Meeting

Objective: Appropriate implementation of European Reference Networks

Neimenster Abbey, Luxembourg, 7 November, 2016

The Joint Action on Rare Cancers was launched in November 2016 in Luxembourg with the participation of Dr Vitenis Andriukaitis, EU Health and Food Safety Commissioner as well as Ms Lydia MUTSCH, Luxembourg’s Minister of Health.
Moderators: G. Apolone, A. Montserrat

  • 14.00    G. Apolone, A. Montserrat: Welcome
  • 14.15    G. Gatta: The epidemiological landscape
  • 14.30    Y. Le Camm: The rare disease perspective
  • 14.45    F. De Lorenzo: The cancer patient perspective
  • 15.00    Madame la Ministre Lydia MUTSCH, LU: Welcome from the Minister of Health of Luxembourg
  • 15.15    Videoconference with the Minister of Health, IT, Rome
  • 15.30    V. Andriukaitis: Rare cancers and the EU Directive on Cross-Border Healthcare
  • 16.00    P.G. Casali: Objectives of the EU Joint Action on Rare Cancer
  • 17.00    A. Pannelay (facilitator): Rare Cancers Europe Round table discussion 'The opportunity and the challenges of ERNs' with JY Blay, G. Vassal, J Geissler and E. Terol
  • 17.45    A. Pannelay (facilitator): Rare Cancers Europe Round table discussion 'The European rare cancer community, JARC and ERNs' with the RCE Steering Committee  
  • 18.30    Discussion with the audience
  • 19.00    Closure of the meeting and networking light dinner reception

Joint Action on Rare Cancers

Joint Actions are funding instrument under the third EU Health Programme 2014-2020.

The Joint Action on Rare Cancers is a multi-stakeholder collaboration between 18 Member States and the European Commission, coordinated by the Fondazione IRCCS Istituto Nazionale dei Tumori of Milan. There are 35 partners involved in the JARC including 8 Ministries of Health/Cancer Control Programme representatives (Cyprus, Czech Republic, France, Ireland, Italy, Malta, Poland, and Spain) and 27 universities, public health institutions, cancer registries, oncological institutes, patients’ associations and other societies/organisations (Organisation of European Cancer Institutes – OECI, The European Society for Paediatric Oncology - SIOPE)

The Joint Action on Rare Cancers aims to:

• Prioritise all rare cancers in the agenda of the EU and the Member States with regards to national cancer plans, harmonisation of practices and funding of research.