RCE Patient Advocates course: meeting resources

University of Milan, 20 July 2015

Starting from the Rare Cancers Europe consensus position paper on the methodology of clinical studies in rare cancers, the goal of this event was to inform and educate patient advocates about the Rare Cancers Europe recommendations, improve the awareness around the related challenges, and hopefully find fertile ground for implementation at a national level.

Meeting final programme

Meeting resources

You can now download presentations from the meeting:

• Welcome from Rare Cancers Europe
  Paolo G. Casali
  Rare Cancers Europe

• What is needed for better decision-making?
  Paolo G. Casali
  Rare Cancers Europe

• The principles of frequentist and Bayesian medical statistics
  Paolo Bruzzi
  Italian National Cancer Research Institute

• Surrogate Endpoints in rare cancers
  Paolo Bruzzi
  Italian National Cancer Research Institute

• Study designs in rare cancer
  Saskia Litière
  EORTC

• Organizational aspects of clinical research in rare cancers
  Anastassia Negrouk
  EORTC

• Empowering patient’s decision-making autonomy
  Gabriella Pravettoni
  University of Milan