U.S. NCI issues guidance for deliberations on rare cancer trial closures
On 22 May 2012, the U.S. National Cancer Institute (NCI) Office of Cancer Centres has published the following announcement on the NCI Website
News
Rare cancer research project announces world’s largest release of human cancer genome data
To speed progress against cancer and other diseases, the St. Jude Children’s Research Hospital – Washington University Paediatric Cancer Genome Project announced the largest-ever release of comprehensive human cancer genome data for free access by the global scientific community in order to help researchers everywhere speed discoveries.
Cancer Cell Line Encyclopedia may help to improve rare cancer research
First volume of the Cancer Cell Line Encyclopaedia catalogues the world’s cancer cell lines
European Alliance for Personalised Medicine calls for early access to personalised medicine
Launch of Call to Action to improve patient care by enabling access to personalised medicine in Europe
ESMO Conference on Sarcoma and GIST: Doctors lack awareness of rare forgotten cancers
Thousands of patients with rare forgotten cancers are paying a high price because doctors lack awareness of their conditions
Thousands of patients with rare forgotten cancers are paying a high price because doctors lack awareness of their conditions
4th ESMO Conference on Sarcoma and GIST
European conference explores ways to improve clinical research on rare cancers
Joint ESMO/Rare Cancers Europe conference explores ways to improve clinical research on rare cancers
International Childhood Cancer Day: Calls for policy changes
International Childhood Cancer Day: Calls for policy changes as lives put at risk by bureaucracy
International Rare Cancers Initiative: EORTC – UK – US Global Collaboration
The EORTC has joined forces with Cancer Research UK, the National Institute for Health Research Cancer Research Network (NCRN), and the United States National Cancer Institute (NCI) to launch an initiative to boost the development of new treatments for patients with rare cancers.
Recommendations on Quality Criteria for Centres of Expertise for Rare Diseases adopted by EUCERD
On 24 October 2011, during the third meeting of the European Union Committee of Experts on Rare Diseases (EUCERD), the Recommendations on Quality Criteria for Centres of Expertise for Rare Diseases in Member States were unanimously adopted by the 51-member EUCERD, which has representatives from all 27 EU Member States and from all domains relevant to the fields of rare diseases and orphan drugs, including academia, government, the biopharmaceutical industry and patient organisations.
European Multidisciplinary Cancer Congress highlights challenges posed by rare cancers
On 24 September 2011, the 2011 European Multidisciplinary Cancer Congress, held from 23-27 September 2011 in Stockholm, Sweden, organised the first-ever patient advocacy/ethics session dedicated specifically to rare cancers.
Rare Cancers Europe: New name and new action
At the occasion of the 2011 European Multidisciplinary Cancer Congress held from 23-27 September 2011 in Stockholm, Sweden, the European Action Against Rare Cancers initiative presented its new name and logo, Rare Cancers Europe, as well as its new tagline: Joining forces for action.