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The EUCERD has issued the following 5 recommendations on centres of expertise, European Reference Networks, registries, indicators for national plans and improving informed decisions based on the clinical added value of orphan medicinal products.
Rare diseases are a serious public health problem that presents unique challenges to many countries.
ESMO shows its support for World Cancer Day: 4 February 2013
The cooperating organisations involved in the Rare Cancers Europe initiative and 25 non-commercial and commercial organisations have issued a joint statement on the Proposal for an EU Regulation on Clinical Trials.
On 22 May 2012, the U.S. National Cancer Institute (NCI) Office of Cancer Centres has published the following announcement on the NCI Website
To speed progress against cancer and other diseases, the St. Jude Children’s Research Hospital – Washington University Paediatric Cancer Genome Project announced the largest-ever release of comprehensive human cancer genome data for free access by the global scientific community in order to help researchers everywhere speed discoveries.
First volume of the Cancer Cell Line Encyclopaedia catalogues the world’s cancer cell lines
Launch of Call to Action to improve patient care by enabling access to personalised medicine in Europe
Thousands of patients with rare forgotten cancers are paying a high price because doctors lack awareness of their conditions
4th ESMO Conference on Sarcoma and GIST
Joint ESMO/Rare Cancers Europe conference explores ways to improve clinical research on rare cancers
International Childhood Cancer Day: Calls for policy changes as lives put at risk by bureaucracy
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