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Recommendations on Quality Criteria for Centres of Expertise for Rare Diseases adopted by EUCERD

On 24 October 2011, during the third meeting of the European Union Committee of Experts on Rare Diseases (EUCERD), the Recommendations on Quality Criteria for Centres of Expertise for Rare Diseases in Member States were unanimously adopted by the 51-member EUCERD, which has representatives from all 27 EU Member States and from all domains relevant to the fields of rare diseases and orphan drugs, including academia, government, the biopharmaceutical industry and patient organisations.

Rare Cancers Europe: New name and new action

At the occasion of the 2011 European Multidisciplinary Cancer Congress held from 23-27 September 2011 in Stockholm, Sweden, the European Action Against Rare Cancers initiative presented its new name and logo, Rare Cancers Europe, as well as its new tagline: Joining forces for action.

European childhood cancer research in danger

At a time when the effects of paediatric oncology research have meant that more and more children survive cancer, its funding is too low and dependent on short-term grant.

Rare Disease Day – Focus on Health Inequalities

February 28th, 2011 is Rare Disease Day. All over the world, rare disease patient organisations and their partners will join forces to create awareness of rare diseases and the millions of people affected by them.

MEPs remember Children with Cancer

Young patients joined MEPs, experts in paediatric oncology and others to discuss how the rapid rate of progress previously established in childhood cancer is being forcibly arrested by the implementation of recent EU legislation.

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