Oops, you're using an old version of your browser so some of the features on this page may not be displaying properly.

MINIMAL Requirements: Google Chrome 24+Mozilla Firefox 20+Internet Explorer 11Opera 15–18Apple Safari 7SeaMonkey 2.15-2.23

European Reference Networks

RCE has long held the belief that the field of rare cancers would significantly benefit from a more effective use of cross-border healthcare options and the promotion of excellence of medical and healthcare professionals. RCE has been one of the foremost proponents of European Reference Networks (ERNs) and the need to increase awareness about rare cancers within this specific framework. Of these ERNs, four are directly related to rare cancers:

The first ERN involving healthcare units were launched across 26 Member States in March 2017. They were developed with the aim of facilitating a discussion on complex or rare diseases and conditions that require highly specialised treatment, and concentrated knowledge and resources.

Currently, there are more than 900 highly specialised healthcare units from over 300 hospitals in 26 EU countries (1). The 24 ERNs are working on a range of thematic issues including bone disorders, childhood cancer and immunodeficiency. For healthcare professionals, the ERNs an opportunity for networking with like-minded experts from across Europe which is extremely advantageous considering the professional isolation that many experts in rare diseases face.

ERNs are coordinated by the Board of Member States, set up in February 2014 to approve Network proposals and healthcare providers' membership applications, evaluate and terminate Networks, and decide on loss of membership. RCE will continue to closely work with the ERNs focused on rare cancers with the aim to improve medical knowledge and improve rare cancers patient referral to centers of expertise.

Reference

  1. European Commission, available here

This site uses cookies. Some of these cookies are essential, while others help us improve your experience by providing insights into how the site is being used.

For more detailed information on the cookies we use, please check our Privacy Policy.

Customise settings