The Call to Action is an international petition that urges policy-makers and all other relevant stakeholders to give high priority to quality treatment and care for patients with rare cancers.
Rare Cancers Europe
Joining forces in action
More common than you think
More than 4.3 million people in the European Union are affected by rare cancers. Despite the rarity of each of the 198 rare cancers, they represent in total about 22% of all cancer cases, including all cancers in children, diagnosed in the EU28 each year.
Call to action
Rare Cancers: The Challenges
- Late or incorrect diagnosis
- Lack of access to appropriate therapies and clinical expertise
- Very limited number of clinical studies due to the small number of patients
Specific clinical trial methodology needed for rare cancers
RCE calls for new criteria to be used in clinical trials on rare cancer treatments.
Rare Cancers: Pathologic Diagnosis
A range of publications that can browsed online by all ESMO members and downloaded for offline use.
Latest news
Joint-Action-Against-Rare-Cancers-European-Parliament
An event hosted today at the European Parliament has celebrated the successful completion of the EU Joint Action on Rare Cancers (JARC)
Rare Cancers Europe 10th anniversary event at the European Parliament
Rare Cancers Europe: 10 years of cooperation to improve care for cancer patients
Rare Disease Day 2018
Raising awareness of the importance of research for the rare disease community
European Reference Networks: Rare Cancers or Forgotten Cancers?
A call for appropriate categorisation of European Reference Networks