The Call to Action is an international petition that urges policy-makers and all other relevant stakeholders to give high priority to quality treatment and care for patients with rare cancers.

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Joining forces in action
More than 4.3 million people in the European Union are affected by rare cancers. Despite the rarity of each of the 198 rare cancers, they represent in total about 22% of all cancer cases, including all cancers in children, diagnosed in the EU28 each year.
The Call to Action is an international petition that urges policy-makers and all other relevant stakeholders to give high priority to quality treatment and care for patients with rare cancers.
- Late or incorrect diagnosis
- Lack of access to appropriate therapies and clinical expertise
- Very limited number of clinical studies due to the small number of patients
RCE calls for new criteria to be used in clinical trials on rare cancer treatments.
A range of publications that can browsed online by all ESMO members and downloaded for offline use.
An event hosted today at the European Parliament has celebrated the successful completion of the EU Joint Action on Rare Cancers (JARC)
Rare Cancers Europe: 10 years of cooperation to improve care for cancer patients
Raising awareness of the importance of research for the rare disease community
A call for appropriate categorisation of European Reference Networks
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