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Joining forces in action
Rare Cancers Europe (RCE), 39 partner strong multi-stakeholder partnership, founded in 2008 and coordinated by the European Society for Medical Oncology (ESMO), brings together scientific societies, patient and research organizations, healthcare and education providers, and the industry.
24% of all new cancer diagnoses, including all paediatric cancers, are rare forms of the disease. With 650,000 new rare cancer diagnoses annually and around 5.1 million people in the EU living with a rare cancer, rare cancers are not so rare.
Despite the EU’s many achievements, the very nature of rare cancers adds a layer of complexity to overcoming the challenges they pose to patients, the researchers and the healthcare professionals who research and treat them. Thus, all policies at the EU level should to take into account the specificities of rare cancers to provide the best possible care to all patients.
On 22 February 2023 RCE partners met in Brussels for a one-day strategy meeting to identify and discuss the future direction of RCE partnership, with a particular focus on advocacy activities
RCE is delighted to announce that it has been invited to join two new projects run by the EFPIA Oncology Platform (EOP).
Rare Cancers Europe is delighted to announce the election of its new Steering Committee.
The webinar brought together speakers from EU institutions, European Reference Networks, scientific societies, patient organisations, industry and other crucial stakeholders to discuss the challenges the community is facing and potential solutions.
Rare Cancers Asia (RCA) is as a multi-stakeholder partnership, including all groups with an interest in improving the lives of rare cancer patients in the Asia-Pacific Region.
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