Rare Cancers Europe

Joining forces in action

Campaign

More common than you think

More than 4.3 million people in the European Union are affected by rare cancers. Despite the rarity of each of the 198 rare cancers, they represent in total about 22% of all cancer cases, including all cancers in children, diagnosed in the EU28 each year. 

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Call to action

The Call to Action is an international petition that urges policy-makers and all other relevant stakeholders to give high priority to quality treatment and care for patients with rare cancers.

List of Signatories
Rare Cancers: The Challenges

Rare Cancers: The Challenges

- Late or incorrect diagnosis
- Lack of access to appropriate therapies and clinical expertise
- Very limited number of clinical studies due to the small number of patients

Latest news

Rare Disease Day 2018

Raising awareness of the importance of research for the rare disease community

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