Rare Disease Day 2014
28 February 2014 marks the seventh international Rare Disease Day coordinated by EURORDIS.
Rare Cancers: The challenge of accurate diagnosis - press release
A Consensus on Improving the Pathologic Diagnosis of Rare Cancers was presented today by Rare Cancers Europe, together with the European Society for Medical Oncology (ESMO) and the European Society of Pathology (ESP) in Brussels. The recommendations aim to help rare cancer patients get a timely and accurate diagnosis.
EONS Magazine: Talking about rare cancers
Including an article on Rare Cancers Europe!
World Cancer Day 2014: Debunk the myths
The 4 February is all about debunking myths surrounding cancer. The biggest rare cancer myth? It's that they are not rare at all - rare cancers make up 22% of all cancer cases.
Rare Cancers Consensus Meeting: Pathology in Rare Cancers
Improving pathological diagnosis. 10 - 11 Feb 2014, Brussels
European Medicines Agency Recommends Refusal of the Marketing Authorisation for Masitinib
On 21 November 2013, the European Medicines Agency Committee for Medicinal Products for Human Use (CHMP) adopted a negative opinion, recommending the refusal of the marketing authorisation for the medicinal product masitinib (Masican), intended for the treatment of malignant gastrointestinal stromal tumour (GIST).
The European Oncology Nursing Society (EONS) published the autumn 2013 edition of their magazine entirely dedicated to Rare Cancers
Robert Schaefer, guest editor and former project manager of Rare Cancers Europe, describes the journey that led to a unique multi-stakeholder initiative to address the key challenges linked to rare cancer research, treatment and care in Europe.
2013 Report on the State of the Art of Rare Diseases Activities in Europe
This document has been produced by the Scientific Secretariat of the European Union Committee of Experts on Rare Diseases (EUCERD, formerly the European Commission’s Rare Diseases Task Force) through the EUCERD Joint Action: Working for Rare Diseases (N° 2011 22 01, Coordinator: Kate Bushby, University of Newcastle, United Kingdom), within the European Union’s Second Programme of Community Action in the Field of Health.
Patients' Rights in Cross-Border Healthcare - Results of the Public Consultation on the Implementation of European Reference Networks
Directive 2011/24/EU of the European Parliament and of the Council of 9 March 2011 on the application of patients' rights in cross border healthcare requires the European Commission to support Member States in the development of European Reference Networks between healthcare providers and Centres of Expertise.