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World Cancer Day 2014: Debunk the myths

The 4 February is all about debunking myths surrounding cancer. The biggest rare cancer myth? It's that they are not rare at all - rare cancers make up 22% of all cancer cases.

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2013 Report on the State of the Art of Rare Diseases Activities in Europe

This document has been produced by the Scientific Secretariat of the European Union Committee of Experts on Rare Diseases (EUCERD, formerly the European Commission’s Rare Diseases Task Force) through the EUCERD Joint Action: Working for Rare Diseases (N° 2011 22 01, Coordinator: Kate Bushby, University of Newcastle, United Kingdom), within the European Union’s Second Programme of Community Action in the Field of Health.

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Joint Statement on EU Clinical Trials Regulation

The cooperating organisations involved in the Rare Cancers Europe initiative and 25 non-commercial and commercial organisations have issued a joint statement on the Proposal for an EU Regulation on Clinical Trials.

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