Press Release: Specific clinical trial methodology needed for rare cancers
A consensus paper published in Annals of Oncology by Rare Cancers Europe (RCE), calls for new methodologies to be applied to clinical studies in rare cancers
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A consensus paper published in Annals of Oncology by Rare Cancers Europe (RCE), calls for new methodologies to be applied to clinical studies in rare cancers
28 February 2014 marks the seventh international Rare Disease Day coordinated by EURORDIS.
A Consensus on Improving the Pathologic Diagnosis of Rare Cancers was presented today by Rare Cancers Europe, together with the European Society for Medical Oncology (ESMO) and the European Society of Pathology (ESP) in Brussels. The recommendations aim to help rare cancer patients get a timely and accurate diagnosis.
Including an article on Rare Cancers Europe!
The 4 February is all about debunking myths surrounding cancer. The biggest rare cancer myth? It's that they are not rare at all - rare cancers make up 22% of all cancer cases.
Improving pathological diagnosis. 10 - 11 Feb 2014, Brussels
On 21 November 2013, the European Medicines Agency Committee for Medicinal Products for Human Use (CHMP) adopted a negative opinion, recommending the refusal of the marketing authorisation for the medicinal product masitinib (Masican), intended for the treatment of malignant gastrointestinal stromal tumour (GIST).
Robert Schaefer, guest editor and former project manager of Rare Cancers Europe, describes the journey that led to a unique multi-stakeholder initiative to address the key challenges linked to rare cancer research, treatment and care in Europe.
This document has been produced by the Scientific Secretariat of the European Union Committee of Experts on Rare Diseases (EUCERD, formerly the European Commission’s Rare Diseases Task Force) through the EUCERD Joint Action: Working for Rare Diseases (N° 2011 22 01, Coordinator: Kate Bushby, University of Newcastle, United Kingdom), within the European Union’s Second Programme of Community Action in the Field of Health.
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